I am beginning to move all my old blog posts from my old Blogger account into my current account, so I thought I would start with the Facebook notes that would eventually turn into my blog.
It’s hard to believe it has been nine years since I woke up in a Neuro ICU bed in Shreveport.
This post was originally written on April 12, 2012.
Beginning in April of last year, I began writing a series of Facebook notes entitled “What’s Next?” when I was first diagnosed with a brain tumor, and I continued writing until the day of my surgery.
These are those notes . . .
PART ONE
“It’s not a tumor.” That line spoken by Arnold Swartanegger in Kindergarten Cop used to be the first thing I thought of when I heard the dreaded word “tumor.” Now there’s one in my brain… I’m not sure if it’s really sunk in yet. A month ago, I woke up unable to hear out of my right ear. The past month has consisted of a lot of antibiotics, and a lot of “Do what?” “What’d you say?” “I’m sorry. What was that?” Two days ago, on the way to what was supposed to be a normal hearing test, my face starting spasming and became paralyzed. I began to wonder if all my years of making funny faces finally caught up with me, and moms across the world were proven correct that my face actually did get stuck. The whirlwind then began, and by whirlwind I mean sitting in the hospital for hours upon end. After learning that Glenwood Medical Center owns what I like to refer to as “The World’s Smallest MRI Machine,” I also learned that someone with extreme claustrophobia does not care about tight spaces, nor does one remotely remember the hyperventilation of two previous attempts in previously stated MRI machine for elves if the dosage of sedatives is high enough. After somewhat waking after up from my trip down the happy MRI yellow brick road, I vaguely remember my ENT doctor, Dr. Badi, standing by my beside. He said, “We have your MRI results. There is a tumor.” Maybe it was the lingering sedation, or Dr. Badi’s awesome comforting Indian accent, but I never got the sinking feeling in the pit of my stomach that I always imagined hearing the words “It’s a tumor.” would bring. My first thought was, “OK. What’s next?” I guess that was the old ball coach I still have deep inside me coming out. As a coach you always are thinking next: next game, next play, next pitch, next timeout, next sub… Turns out next was the most uncomfortable ride ever to Shreveport strapped to a gurney inside an ambulance. Not quite as exciting as calling a 1-2 curveball and seeing number seven throw a perfect hook that buckles a batter’s knees and leaves him shaking his head as he walks back to the dugout, but very few things in life are ever that exciting. When we arrived at LSUHSC, I became the first ever patient to walk himself into the Neuro ICU, and my “next” became a series of wires on my chest, two IV’s, a heart monitor, a blood pressure cuff that went off every 30 minutes (I named her Eileen), & a personal nurse that stayed by bedside constantly. Apparently patients in Neuro ICU are strictly forbidden to leave their beds, so when I asked my nurse to unhook my IV’s so I could go pee, he brought me a jug. I laughed, but by the look on his face, I soon realized he seriously wanted me to pee in the bottle. I told him, “That’s OK. I’ll just hold it.” To which he responded, “We’ll see. I’ll hang it here just in case ” The challenge was issued, and the gauntlet had been dropped. Who would cave first? Would it be me with my ever expanding bladder, but mulelike stubbornness, or the protocol following nurse? I’m proud to say that at 12:03 p.m., my pee jug was still clean and empty, and I walked to the restroom with a big grin and a hurried, pained shuffle. Chalk up one for the good guys! The only downfall to being in ICU, besides already mentioned lack of bathroom facilities, is that you are not allowed visitors except for every four hours, and then they are allowed to stay for only 30 minutes. For a social butterfly like me, I knew this was going to be tough, but I had a TV, and it was Masters’ Friday. LSUHSC has some of nicest nurses I have ever encountered, and some brilliant doctors, but they do not, I repeat, DO NOT GET ESPN. Here I was, stuck in bed with all day to do nothing but watch the greatest golf tournament in the world, and I could not even see the outfit Rickie Fowler would be wearing. Instead I would be stuck watching CNN with my roommate who I named Clarance the Catheter Boy. He was an older gentleman that talked about his catheter constantly. When he wasn’t talking about his catheter behind the divider curtain, he would move the curtain aside and stare at me. He never spoke… just stared. Clarance ended up getting to go home around 1 p.m., so that left me alone with Angry Birds, Doodle Jump, some old sitcoms, game shows, and A LOT of Twitter, Facebook, and texting. One thing I have learned in the infancy of this ordeal is that I have truly amazing friends and family. Your Facebook posts and messages, your phone calls, your visits, and your texts have been uplifting and encouraging beyond measure. Words cannot truly convey my gratitude to all of you. Now for the next two days, my “next” consists of lying in bed getting doses of steroids that Barry Bonds could not even lie about and getting my finger pricked to make sure said steroid shots do not turn me into a diabetic. After the weekend, the decision to undergo radiation or have the tumor cut out will have to be made. This is really just the beginning of a long journey. Please continue to pray for me, for my doctors, and especially for my family. Oh, and please keep the texts coming! To be continued…
I never really felt the true meaning of Lennon’s lyrics until recently. My “next” did not involve a hospital stay, nor did it account for a tumor. This weekend was to be my first WAC baseball series to call on PA, tonight was going to consist of rubbing elbows with Tech’s finest, and tomorrow was to be spent on Louisiana’s finest golf course… Instead, life happened… Now my “next” consists of double doses of steroids every six hours and muscle relaxers every eight hours. The muscle relaxers ease the paralysis in my face, allow me not to look like Sloth or Two Face, but they make me absolutely useless to the world. The great news is that the doctor gave me the option to continue my drug regiment at home. It was a hard call between the bad food, tiny bed, small TV with less than 20 channels versus my couch and my 62″ Samsung with DIRECTV, but life’s all about making the tough decisions. I was so happy to get back into the Ruston radio radius (try saying that five times fast), so I could hear some Bulldog baseball. You don’t fully appreciate little things in life until you take them for granted, and they’re taken away from you. I’m supposed to meet the brain surgeon on Friday to map out a plan, and hopefully remove the tumor as soon as possible. So now for the next few days, I wait, and Tom Petty probably sums it up best: “The waiting is the hardest part.” Please continue to text, and don’t worry that you’re going to bother me. I genuinely enjoy the conversation. I also appreciate the continued Facebook posts. I hope to answer all of you personally soon, but for now: Thank you, thank you, thank you. Just knowing that you care enough to take a moment out of your day to think about me, and share that, is truly amazing. Please continue to pray for my family’s strength to tolerate me, and put up with my random drug induced solo karaoke sessions and random movie quotes. The hardest part is yet to come. I’m not scared. I just want to move forward to the “next.” To be continued…
“And it’s a goofy thing, but I just gotta say, ‘Hey I’m doing alright.'”
Music… Such a common word. It’s all around us, no matter where we go. Think of your favorite song, and I would bet you have a favorite memory associated with it. Growing up, I was instilled with a deep love for music. My dad was a rocker; my mom loved disco, pop, and oldies; my grandparents listened to nothing but country. I discovered a love for jazz once I heard my first John Coltrane album, and Tupac’s “All Eyez On Me” introduced me to rap. All of these influences have been blended together to create quite a diverse collection of music on my iPod, and I have music for any situation that may happen next… even if the “next” is a tumor. Music can lift the soul like no other can. Throughout the past few days after finding out about my tumor, I have rediscovered that uplifting quality that a melody can bring. So many songs and lyrics run through my head randomly. From “Amazing Grace” to Bob Marley, there’s joy and comfort to be found in so many songs. I am not sad, nor am I angry or scared… I am confident. I have a peace like no other, and I am ready. Every day is a great day to be alive. So turn on your radio, roll the windows down, turn it up, and sing it as loud as you can. Don’t be afraid to live out loud. Appreciate life’s small wonders, dance in a car wash, laugh until you cry, and take time to tell your friends and family how much you love them. “Sometimes, I’m clueless and I’m clumsy, but I’ve got friends who love me, and they know just where I stand. It’s all a part of me, and that’s who I am. I’m a saint, and I’m a sinner. I’m a loser. I’m a winner. I am steady and unstable. I am young, but I’m able.” To be continued…
“Life ain’t always beautiful, but it’s a beautiful ride…”
That has been me so far… a beautiful ride… Not in the literal sense mind you. After a month of high dose steroids, my head resembles a Macy’s Day Thanksgiving Day Parade balloon. Imagine a cheesy comedy where the highly allergic hero gets stung by a bee…. I think you are seeing it now… Yeah, that is what my face looks like. My hat selection has been greatly reduced, and I have to constantly put my glasses back on because they pop off my ears. It has become quite comical actually. I have always been able to laugh at myself, and I have prided myself on not taking life too seriously. Having a brain tumor has done nothing but reinforce this trait in me. I chuckle every time I look in a mirror.
The looks I get from others in public vary, but they usually fall into three categories: pity with extended eye contact, pity with quick eye diversion, and gawking openly. The gawkers are my favorite. If I saw me, you would better believe I would want to stare. I have a bobblehead with a face that does tricks all on its own. I am sure it is quite entertaining.
Another great side effect to my steroids is they do not allow me to sleep with any kind of regularity. I usually average a total of four hours of sleep a day/night. My body is completely tired and exhausted, but my brain stays running like a never ending train. I am at least up to date on every TV series that I have on DVR; I know the score to every game, set, or match played; and I can tell you where the best Diners, Drive-Ins, and Dives are located in America.
But alas, all the steroid induced fun is about to come to a close…
I guess this is where I should back track some, and catch up on what happened since April 15…
After waiting (for over three hours) to meet with the neurosurgeon, he became greatly concerned that my symptoms were not lining up with that of what a tumor should be showing. He feared that I may have had a brain stem stroke and other complications that would make surgery a much bigger ordeal, so he ordered more tests. To be completely honest at the time, I was furious. I had gone into the consult with a bag packed ready to go to surgery, and get the tumor out. Now, I had just been told that I have to wait even longer. I am by no means a patient man, and the thought of two more weeks of tests and waiting was not what I wanted to hear. After thinking and calming down the next day, I came to the realization that this was brain surgery, being thorough might not be that bad of an idea…
After a much more pleasant and more timely consult yesterday, the tests showed that there was no stroke and any permanent brain stem damage. With that news surgery can proceed, but only after my body is completely cleared from the massive amounts of steroids I am taking. So now I have a month of detox off of the steroids. This will probably be the worst part of the entire ordeal. The steroids control the inflammation of the nerves, which control the massive headaches and intense pain. Not to be left out is the intense ringing… Imagine if you will, the annoying “This is a test of the Emergency Broadcast System….” shrill sound… Now intensify the volume, and up the pitch… That’s pretty much what I hear on the right side of my head.
Although I know without a doubt in my mind the next month will extremely tough, we have a plan: a set and solid plan.
I go back to the neurosurgeon on May 27, and on that date, we will set my surgery date.
“I will not boast in anything: no gifts, no power, no wisdom. But I will boast in Jesus Christ, His death and resurrection. Why should I gain from His reward? I cannot give an answer. But this I know with all my heart, His wounds have paid my ransom.”
I am confident.
I am ready.
PART FIVE
“My time is now. You can’t see me. My time is now. It’s the franchise, boy. I’m shining now. You can’t see me. My time is now.”
Wow, it is finally here. In three hours I will leave my hotel, head down the street, and go to Admitting. I would love to tell you that it seems like just yesterday that I was lying in Monroe finding out that I had a tumor, but it does not. This has been a long, and often painful process. Through it all, I have seen God’s hand work like I have seen few times before. So often we hear or use the phrase “a blessing in disguise” that it almost becomes cliche, but I truly feel like I have been blessed. I have learned so much through this ordeal, and it really is not over yet. After the procedure today, there will be more tests down the road. I cannot tell you how much I am looking forward to getting an MRI every sixth months in the machines built for people who are obviously much smaller than me. But that is far down the road, my next is the gamma knife. You really should Google “gamma knife” if you do not know what it is. We chose to go the gamma knife option because it is far less invasive than traditional surgery, and gamma knife has a 95% success rate. I get to wear an awesome helmet that is screwed into my head, but I have been promised some great drugs. So that is pretty much it for now. The day is finally here. I appreciate the continued prayers.
“I’m a lucky man to count on both hands the ones I love.”












